"Illness Unspecified"
R69 Initiative September 2024 Roundtable
Hosted by HealthWeb Solutions, this roundtable included an overview of the last year of projects, a lively discussion, and several action items.
Sim Baker from HealthWeb Solutions welcomed everyone to the event and then Dr. Charles Steward shared the path toward meaningful diagnosis his family has encountered. Helen Hernandez then provided an update on the R69 Initiative's activities and priorities over the past year or so and then an amazing discussion took place with several audience members joining the conversation with their perspectives, encouragements, and concerns. We look forward to having another roundtable soon!
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R69 Initiative 2023
The idea, the vision, and a hopeful future. This 5 minute overview walks through the concept of the initiative and alludes to several ongoing efforts globally that stand to change the world for the better!
October 2022 Presentation
Presented to a Serbian audience for their annual rare disease event, this is an earlier presentation of the idea and shares some insight into how the R69 code is currently being used (not how we envision it but we have big hopes for change!).